The hearing aid vs. teether war might be coming to an end with the glorious help of a bonnet! Thank you to all who responded with tips and ideas, it certainly helped! It's too hot for pilot caps, but not for bonnets!
Today we had another excellent meeting with Lisa and Jacque at Sunshine Cottage. Everyday Bryan and I find ourselves with more and more questions. It is so nice to know that every week we are able to have answers to our many questions. One question that Bryan and I continue to struggle with is whether or not we should do one or two CIs in September. There are good reasons and research to support both options. I keep coming back to the idea that we do have two ears for a reason! I just don't know.
On another note we think that the hearing aids might be providing Courtney with some benefit. We discussed how unusually tired Courtney has been this past week, especially after she has worn her hearing aids for a while. This may be because she is hearing. However, distinguishing the sound is something different. The way that Lisa explained it was turning on a static radio all day long and having us try to make sense of it. We would be tired too! Courtney also turned two separate times when Bryan called out, "No, no, no!" from behind. It was as if she heard something, but wasn't sure what or where it came from.
Only time will tell what benefit, if any, Courtney is receiving from the hearing aids. Even if it was a fluke it was a welcomed glimmer of hope.
Logan is doing fabulous with his eye patch! He wore it for 3.5 hours the past two nights when he only has to for 2 hours! I figured it wouldn't hurt and if it wasn't bothering him, I wasn't going to take it off! So far a much better week for the Kohlers!
5 comments:
Bonnets are a great idea! Nolan is back to taking his aids out this week- very frustrating. He's a boy and probably wouldn't look all that great in a bonnet, but he may be back in a pilot cap if he doesn't cut it out! Luckily it isn't as hot this week...
FYI-- pilot caps are a really thin cotton, so aren't really as hot as most tied winter hats. Oliver wore them all summer his first year, with his hearing aids, and some of the time last summer (indoors in the air conditioning, mostly) to keep his coil in place. Just so you know, there is also a heavier weight winter pilot caps which Hanna Andersson also has in their catalog, but the regular pilot caps are like T-shirt material or thinner.
All wonderful news! I'm glad you're finding some solutions and even happier that you've finally gotten the encouraging signs, you and Brian have needed. And it's really cool to see how connected you're getting in the Blogsphere. You got set up just in time!! Love you, K!
This journey is quite something isn't it? There are always questions, but not always answers and it seems the decision, once made, can be life lasting. SCARY. I just always pray the right decision will come when needed ... and it will. How exciting that the aids are providing some benefit ... doesn't it just melt your heart! No matter what though, that CI nerve is getting stimulated and that is so important! Believe in what you see ... a glimmer of hope is always better than none at all!
Karen I just found you on Heather's site....I didn't even KNOW you had a blog! I am so glad that now I can keep up with you! Please know if you need ANYTHING we are here for you guys! We do need to get Brooklyn and Jeremy a play date though. Jack wouldn't know what to do with Logan and Courtney too! Good luck with everything!
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